What the role will look like:
- Build and maintain relationships with journalists and key media.
- Develop media contacts database using desk research and free tools.
- Develop media hooks and talking points.
- Monitor coverage opportunities using your own/free PR tools and software.
- Monitor the fundraising industry to come up with fresh PR stories and identify trends.
- Assist with writing for all press releases that will be issued by the charity.
- Manage the approval process for all press releases.
- Maintain and update media lists and contact databases.
- Identify and secure speaker opportunities for our founder.
- Work closely with trustees to identify new opportunities and increase donations.
- Work on brand logos and key info that can be given to media.
- Help us to grow our social media presence and collaborate with the marketing team.
- Provide assistance with our online blogs.
- Maintain a calendar of opportunities by partnering with Communications and PR Lead.
Skills
Requirements:
- Experience in a PR role - you will have the ability to build relationships with the media and a full understanding of how journalists and the media operate.
- Excellent written English and the ability to write to media standard and convention.
- Self-motivated, proactive and reliable, using your initiative to make things happen.
- Passion for our vision at SEDSConnective.
Benefits
This is a crucial role in raising awareness, engaging the community & promoting our mission to support individuals with symptomatic hypermobility (EDS HSD), neurodivergent conditions (Autism, ADHD, Dyspraxia, Tourette's, Dyslexia,) & more.
If you want to share your expertise and help us on our mission to support the neurodivergent community, please apply today.
Practical Considerations
Hours: 3-7 hours per week.
You can carry out this voluntary work either in or out of office hours.
Location: This role is completely remote so you can work from wherever you wish!
When do I need to be available?
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- Interests
- Disability
- Activities
- Administration and Office
- Details
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Disabled Access
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Equal Opportunities Policy or Statement
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Expenses
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Health and Safety
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Induction
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Insurance Cover for Volunteers
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Other
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Suitable for 13 - 16 years
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Suitable for 16 - 18 years
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Suitable for a group of volunteers
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Suitable only for (e.g. 18+, LGBT, BAME, Women only)
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Support on Offer
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This role is adaptable for different abilities
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Training


